Does anyone have narcolepsy? Any tips on how you’ve managed it? I have had it (undiagnosed) for years and have bee putting up with it. Fell asleep in classes, while driving longer than 30 min, and in an instant. I fell asleep in a client meeting, when I was one of the lead presenters, the other day, and was super embarrassed. Is it worth getting officially diagnosed? There doesn’t apper to be any good treatments. 😞

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I’d say get diagnosed and (if comfortable) share that info with bosses, teammates, clients to ensure they are more understanding. Had this happen with a consultant and the client and SM always assumed he was just actually sleeping...

I did meet a manager the other day crushing a monster energy at 10am...and he mentioned he has a mild case and would load up on caffeine. Seemed maybe not the healthiest and self prescribed approach, but it was working...

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Hi OP - my boyfriend has narcolepsy and he was diagnosed in college - only after his diagnosis he was able to receive medication to help him sleep (xyrem) so he stopped falling a sleep. It can be dangerous continuing life this way - theres also cataplexy, etc. DM me if you need to chat.

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Yeah i haven’t experienced cataplexy yet

I have it, fully diagnosed, medicated. DM me if you want to discuss.

I'm not on xyrem. GHB is not a medication I want in my medicine cabinet. Their are alternatives that aren't used as date rape drugs.

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Falling asleep in a team mtg happened to my BF. He was tested and had sleep apnea. Ever since he's been on a CPAP machine, problem solved. Sign up for a sleep study, and they'll know if you have sleep apnea by the time you awaken. Good Luck!

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I have the same symptoms (can’t drive >30min, fall asleep everywhere, once fell asleep standing up during a convo) and went through a sleep study. Was actually diagnosed with excessive daytime sleepiness, and I was offered adderall. I ended up not taking the prescription, and have managed to train myself to get better with time.
That being said, I think there’s a lot of value to putting a name to what you have (if only for personal understanding). Whether you take the meds is a personal choice.

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I don’t have narcolepsy. But I believe there are treatment options, such as adderall. I would definitely get a diagnosis so you can explore.

This may sounds selfish but... I hope you don’t drive longer than 30 minutes anymore.

I have it. Diagnosed almost 10 years ago. Have tried it all in terms of meds. Definitely recommend seeing a doctor because those symptoms don’t always equal narcolepsy. You may have another condition.

Whether narcolepsy or something else, you do not need to tell coworkers / managers. Work with HR for ADA accommodations. Message me if you have questions!

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