For those diagnosed with endometriosis, what was your journey? What symptoms did you have and how long did diagnosis take? Thank you!

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Mine may be more atypical. Had somewhat painful periods but mostly still considered normal. Then at age 32 Had a large endometrioma rupture in the middle of a work meeting and went to the ER. Cancer scare later found out it was endo. Still thankfully largely asymptomatic despite super advanced disease. But definitely look into pelvic floor PT and visceral massage as well as some supplements (tumeric, magnesium etc) to help with whatever pain and other symtoms you may he experiencing. Also eat organic and avoid plastics. My CA125 was 2800 (not a typo) when tumorn ruptured but now it's in the normal range of 23.

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Also if fertility is of concern get that checked out sooner than later as well. If further surgery needed then look for excision specialist and go read Nancy's Nook on fb.

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Painful periods my entire life and infertility going on 2 years. I work with a NaPro doctor suspected endo, and I was diagnosed stage 2 back in April via laparoscopy surgery.

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Started having super painful periods 6 years ago. Before that it was just uncomfortable. ObGyn said its pretty common to have such pain, so did family. During pregnancy planning, Gyn suggested we check out fertility treatment options and comes the shock. Fertility specialist spoke to me for 10 mins and diagnosed endometriosis. I was suffering from most of the symptoms he mentioned. Heartbroken we started looking at options for assisted reproduction. Fast forward 4 months got a boipsy and confirmed endometriosis. Took the Ivf route, got treated for endometriosis with 2 shots of Lupron Depot and now, 6 months into pregnancy.
My 2 cents to you, hang in there good things are about to happen.

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I always had painful periods. The first 11/10 brings me back to when I was 17/18 years old however every single time when I would bring it up, whether with my parents or my obgyn I was told that all women have painful periods and I have probably low pain tolerance. And I trusted their opinion ( plus since it was over 25 years ago and there was no access to information we have today, I accepted it as the norm). As I grew older other symptoms included severe pelvic pain, blood clotting, mood swings. Still I was not diagnosed with it.

Fast forward to when I was 33, my nurse practitioner found a cyst on one of my ovaries and send me for some test and soon after I was admitted for a laparoscopic surgery. Only when they looked inside, the doctors realized I have endometriosis ( stage 4) and everything ( intestines and ovaries ) was “glued” inside. One surgery was not enough to do the trick and over the next 4 years I had 2 other surgeries. All in the name of fertility and ability to clear any obstacles to start fertility treatment.

Then it took 5 IVF rounds to finally get successful.

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Through the laparoscopic camera.

I had 2 laparoscopic surgeries and 1 laparotomy ( that started as a laparoscopic surgery but due to scarring they had to proceed to laparotomy which is similar to the c section surgery) During the laparoscopic surgery the doctor makes 2 incisions - one for camera and one for the tool they operate on you with.

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I too always had painful periods. In college I ended up in the hospital because of a ruptured cysts and they said I might have endo. They just told me to go on birth control. I wasn't diagnosed until 30 years old. I had stage 4 endo the doctors saw it on the MRI because it was so bad. I had surgery to remove it and lost a Fallopian tube in the process. I also froze my eggs after.

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It has caused me to suffer from infertility. If you still have good amh, consider freezing some good eggs and try to have babies immediately. I’m going the surrogate route now. It hurts

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