{ "media_type": "text", "post_content": "I'd love to hear from Moms who's kids had a developmental delay, specifically speech. I called our states early intervention program today but I'm waiting to hear back. My daughter is 19 months today and maybe says 2 words, she babbles like crazy still but it's all nonsense. The doctor doesn't seem to have concerns in other developmental areas, she does all the gestures, points, waves etc. Walks just fine and eats like a champ. What else can I do? Did anyone have a good outcome with the programs", "post_id": "62335044e322d70026faab14", "reply_count": 63, "vote_count": 6, "bowl_id": "5a0c9a1f61b01a001937c406", "bowl_name": "Working Moms", "feed_type": "bowl" }
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I'd love to hear from Moms who's kids had a developmental delay, specifically speech. I called our states early intervention program today but I'm waiting to hear back. My daughter is 19 months today and maybe says 2 words, she babbles like crazy still but it's all nonsense. The doctor doesn't seem to have concerns in other developmental areas, she does all the gestures, points, waves etc. Walks just fine and eats like a champ. What else can I do? Did anyone have a good outcome with the programs

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I have 2 special needs kiddos. My oldest is autistic and had zero words by the time he was 2 years old. At 18 months, the pediatrician had her suspicions and at 2 years she immediately put in a referral for an evaluation. Our youngest is ADHD and had a speech delay, likely because her role model was non-verbal and learned to communicate in the same way her brother did. In both cases, we actually went through our county Developmental Disabilities Board. They provided the best support with speech therapy and occupational therapy. They did have a list of therapists to choose from but we chose to go private therapy and they still paid for it.

In both cases, the school system had a hand in their evaluations at 2 years old! Also, in both cases, they began attending preschool on their 3rd birthdays so they could begin intervention asap, also free of charge.

I will say, YOU HAVE TO ADVOCATE FOR YOUR CHILD. Find out who your doctor referred you to and get their number. Call them directly and ask for next steps so you know what to expect. Contact your local Children's hospital and see if they have a Developmental Delay department that performs evaluations. Typically these are high level to cancel out certain delays and focus more on others until they can determine what or if there is anything to be concerned about.

Sorry hun, but until you get a definite answer, be prepared to be stressed and tired beyond belief! 😴

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Thank yyou! My nephew is in the same program we were referred to and he has high markers for autism. My daughters only issue seems to be speech so far and I myself have ADHD and was just recently diagnosed so I'm sure that's a precursor of sorts for her too! My youngest brother is on the spectrum and I was in my late teens so I know some of what my mom went through! Thank you, I'm prepared at least as much as I can be. My husband is less concerned but I would rather start earlier than later even if it isn't anything big! I also just got a call back from and spoke to the lady, they are called first steps here and its through the state, we should be getting paperwork any minute and set up our evaluation soon!

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My son was almost 18 months and had ZERO words. The pediatrician said we could wait a few months before pursuing Early Intervention but I know the process can be lengthy so I started right away. One of the tricky things about EI (not sure if this is everywhere or just where I live) is that he needed 2 qualifying issues to get EI. He ended up getting both speech and developmental therapy — but he totally didn’t need developmental therapy and I dropped it after a few months. He had speech therapy for about 9 months and we saw a noticeable difference. Again, it’s possible he might have started talking without the therapy — but we’ll never know.

We’ve had a long journey with speech therapy for seemingly unrelated issues. At around 3, he had horrible stuttering. It was breaking my heart and becoming increasingly frustrating for him to communicate. Having aged out of EI, we sought out private speech therapy and he had that for almost a year. Again, not sure if it was the therapy or if he would have ultimately outgrown the stuttering as many children do. But I felt that it couldn’t hurt, and more importantly, I do think it expedited his speech development.

He is now 8 and talks non-stop. He no longer stutters. Buuuuut…he’s back in private speech therapy because his annunciation and pronunciation are not clear for many sounds. He didn’t qualify for speech therapy in school because his teacher/classmates can understand him and because his speech is not affecting him academically. That’s crazy to me — just because he does well in school doesn’t mean he doesn’t have difficulty with his speech. So that’s been frustrating!! Now he’s back in private therapy and is making progress. His therapist says he’s doing great but I’m not gonna lie…I do worry that he will always struggle with his speech.

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I had speech issues and still have a few things that I just cannot for the life of me pronounce right, but my have been linked back to oral ties and my daughter inherited them as well. Hers have been clipped so I am hoping that's a small part of it but I'm sure we will find out soon.

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Start early! You can always reach out to ECI for an evaluation to see if your child qualifies for services. There is zero risk with an assessment. If they need services awesome- dig in and go for it because the earlier they start the better. If they don’t- that’s great, too but the SLP can likely give you some exercises to do on your own time.
I have 4 children- kid 2 (now 12) was my latest talker and he still struggles with some articulation issues and has been in speech since he was 4. I deeply regret not pushing for it sooner because some of his bad habits could have been more easily fixable earlier.

Kid3 needed PT/OT. I started noticing around 3 hey maybe he isn’t quite as agile or able to move as easily as some peers (and he had a congenital trigger thumb which led to some fine motor skills issues)- so we were able to work through those issues and he was released from care at 6!

Then we move to kid 4. She was a preemie born 5 weeks early due IUGR and she had some delays early on with gross and fine motor skills. She was put into PT and OT at 6 months and released around 12 months. She is now 2.5 (okay maybe she’s almost 3, but I refuse to say that) and you zouke NEVER think she was ever behind her peers. She is a total firecracker 🤣

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It's the first thing they will do with early intervention, my nephew is in the program now and it's the first thing they did for him. I had tubes as a child but I was much older when I got them.

My son has apraxia. His early intervention therapist was not good. He started preschool at 3. We also have him do private speach therapy once per week. The private therapist honestly seems to help the most, and we are able to bill through out insurance. The most important thing you can do is work on it as a family. One or two sessions a week isn't enough. You need to reinforce what they are learning as often as you can.

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We do have a private speech therapist we can go through if we need to (our IBCLC worked out of a speech therapy office and we got to know quite a few of the therapist over our time and would go to them in a heartbeat) my nephew is in the early intervention though he's got many many more issues and so far they seem to be doing well in the program so I have hopes.

Get her evaluated and advocate

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My child didn’t speak until we got him services my son didn’t have a single word at 17 months. I kept pushing the pediatrician to get us a speech consult and she finally gave in.

What I didn’t realize and I now know- you can hire a private speech therapist (insurance might or might not pay for it).

Sometimes kids don’t qualify for EI depending on their measures, however, it might be good to get a private evaluation.

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This is great advice

I am in Texas, and my son’s referral to Early Childhood Intervention came from our pediatrician. ECI was great for us, then we fed into the public school system for preschool starting at age 3. I’m not sure whether ECI accepts referrals from parents? But even if your state agency turns you away, you could contact a private speech therapist for an assessment.

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We just got the call back to get in! We do have some private options our IBCLC sent me when I reached out to her so we are gonna do ECI first and go from there if we aren't accepted.

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I had a son who had a speech delay. I wasn’t very worried because he seemed to understand everything and could say some simple words. However, a couple of things made me realize that we needed help. 1). He either could not or would not string two words together. He was nearly three and could say “hi” and “mom” but if I asked him to say “hi mom” he didn’t say anything at all. So I was concerned. 2). Once he was that age, around 3, we thought “what if he DOES need help and we wait even longer…?” We did get help, ears tested, etc. And he was enrolled in a county program with some group and one on one intervention. Even if your doctor doesn’t refer you, maybe call and discuss your concerns. I think those types of social services are really interested in helping so they may understand your concerns and be able to help you. I’m not sure that we ever understood what was going on but he eventually started speaking in complete sentences! Good luck you you.

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My nephew was 2 and not speaking. Pedi said oh it’s fine. My sister got early intervention analysis who said his needs were not sore enough to qualify for services. My sisters gut was that they had an issue. She paid out of picket for two years. From that there was an amazing change in every facet of his life. He could communicate so his frustration went down. His tantrums went away. He stated behaving and acting like his own age. He was able to develop better friendships. Thr list goes on and on. Speech can be a huge barrier to all thr other learning that requires expression ans confidence in yourself.

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Is she around lots of kids? We have 5 and the oldest had a slight delay but the younger one’s already had lots of kids to encourage them and challenge them.

I think this make a difference but we put the oldest in a program at school but not sure he needed it. He grew out of it.

Also check the ears, my daughter had ear infections that were a concern.

Don’t stress too much all kids are different.

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She really isn't, we can't afford child care so she goes to my in laws or my parents to be sat while we work. On my off days she often has playmates maybe 2 or 3 a month but a lot of my friends kids don't seem to be talking quite yet either. We did just get into early intervention moments ago so hopefully we can get some answers soon!

I secknd this. Try to get an early intervention assessment. But realize that they may say you don’t qualify for services…which doesn’t t mean you don’t need them…just they are not free/covered.

Also try local Childrens hospital

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We went through something similar. At 18 months my daughter had less than 10 words. Our ped agreed to an evaluation. We did the state evaluation (early intervention) and did not qualify for services. They said the child had to show delays in TWO categories and speech was only 1. She was on the tail end of ‘normal’ for speech and normal for everything else. We decided to wait and see. Her language took off quite a bit by the time she turned 2. Once she was 2, we started her in daycare and her language EXPLODED. She’s 2.5 now and is very advanced with language. Just took her some time.

You can always pursue private speech therapy on your own. You can ask your ped for a list of places (or just google/check with your insurance). I looked into this for my daughter before we decided to wait and see. It’s always an option, you will just have to pay OOP for whatever insurance doesn’t cover.

Speech sisters (instagram) also has a lot of content I found helpful. Some kids are just slower, but catch up on their own. Some kids need some help to get going. There are lots of different avenues to finding the right path for your child.

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We have an SLP our IBCLC can refer us to if we need it outside of ECI so we have resources. She had oral ties and we corrected them but I know they also can still have an effect on her speech and im hoping it's partially that too!

My son will be three in August and only has about 20-40 words so far. We were on a waiting list for 6 months to get with a speech therapist. Still haven’t secured consistent apt. During his evaluation they labeled his expressive communication as “severely delayed” and his comprehension as “mildly delayed” and asked if he had a referral for occupational therapy too I got so worked up about “severely” and why she asked about occupational therapy. I spoke to my sister who is a pediatric physical therapist in Scotland who let me speak with a friend who is a speech therapist there who said he was completely fine and expressing his wants by pointing and was trying to speak so not to worry. I was so confused.

Long story short he is speaking more every day and babbling constantly. I really do think some kids just Learn slower at their own pace. America puts such an emphasis on the fact they NEED to have x number of words by x months and it’s not a one size fits all. All this to say hang in there, if you feel she is communicating with pointing etc. trust your gut you are her mama. (Sorry if this was t helpful just wanted to share as I felt our situations were slightly similar)

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She can communicate she points and brings us things she wants, and she babbles but it's all gibberish. I didn't get enough words to mention that we also had oral ties released at 5 weeks and I know that sometimes having ties or even having had them released can effect her speech too.

My kid is 17 months and has zero words. The pediatrician won’t refer us to early intervention because she said she’s not concerned. If he doesn’t have any words by eighteen months is there any way I can get him evaluated without a referral?

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Our early intervention doesn't actually need a referral. I called today (our doctor instructed us to) and she basically allowed me to refer my own child!

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My son didn’t really speak till 2.5 year of age but he comprehended just fine which made him test just high enough to not be eligible for early intervention.

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Thank you EVERYONE so much I have been so in my feelings about it and this has helped a ton. I didn't get to mention that she did have oral ties released at 5 weeks and I know sometimes that can effect speech too even after they are released. We got a call back from ECI today and are just waiting on an appointment but we will continue to rack up private options just in case she doesn't qualify!!

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Lots of great advice here, so I won’t add but just wanted to share that for us the speech delay was a result of hearing loss at age 1. We had a myringotomy (ear tubes) and were regularly seen by audiologist, ENT, and in speech therapy. Now at age 4.5 she’s doing so well speech wise and I hope for the same outcome for you

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SAME!! My son got his ear tubes at 18 months and I’m convinced his speech delay was caused by constant pressure in his ears and not being able to hear. You’re the first other mom who has validated that thought. Thank you!

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So. My daughter, my eldest, had no speech issues, and talked up a storm. Then my son was only saying 1-2 words at a time by 2.5, despite being in daycare for a number of years. Our doctor was not concerned, but I was! I had decent insurance at the time, which covered private speech therapy. It was the best investment I made for my son. He still has a delay, at the age of 5, but he went from screaming in rage unable to communicate what was wrong with him (even if he stubbed his toe), whereas now, he is a decent communicator and shares his thoughts, feelings and ideas. The rest will come in time, but I’m so happy to hear him talk.

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One more for you. One of my twins was speech delayed. No words at 2 1/2. He did the speech therapy thing through the state until he was three. He was otherwise happy and healthy but I was worried about autism or mental delays/issues because of it. He graduates top of his class soon with a perfect score on the ACT. He obviously can talk but still can’t be bothered to talk much - introverted (and super stubborn) but smarter than me. His twin will also graduate soon but is more of an average student even though at two, I thought he was the “smart” one.

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I don’t regret putting the one twin in speech therapy. He enjoyed it! Better safe than sorry if there is no downside to the service.

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I was a later talker. My sons same as me. I think it's a family fact and nothing more. I was bilingual and the specialist told me to not speak in English to my sons to avoid them more chaos. I'm not sure if I did right.

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