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If she can get the drug she may live a few more months to see her 3 sons graduate college, high school, and middle school.
https://www.change.org/p/biogen-access-to-tofersen-for-lisa-stockman-mauriello?utm_content=cl_sharecopy_27839086_en-US%3A7&recruiter=1185805254&utm_source=share_petition&utm_medium=copylink&utm_campaign=share_petition
Why wouldn’t they give her access under compassionate use? You should reach out to Adam at STAT: https://www.statnews.com/staff/adam-feuerstein/
Also, her physican is part of the Phase 3 and they provided him with zero explanation as to why “compassionate use” was denied
Ed Silverman, Pharmalot
Thank you
I see your friend’s story in STAT!!!!!!!
Great. Thank you!
I’ve followed this story through friends. Apparently they cannot give her the investigational compound without it impacting the larger study and putting everything they’ve worked on at risk. It’s really sad.
https://www.cnbc.com/meg-tirrell/
Thanks
https://www.linkedin.com/in/michel-vounatsos-84050b2
Contact the ceo directly
I don’t understand why