{ "media_type": "text", "post_content": "Went in for a scan yesterday because I was having spotting and cramping at 12 weeks. The OB saw fluid behind the baby’s neck and is referring us to see a high risk doctor immediately. NIPT was negative. I’m panicking. Have any of you been through this?", "post_id": "6141027448fb1900217cc756", "reply_count": 12, "vote_count": 4, "bowl_id": "5adbdacf814eb200185465b5", "bowl_name": "Fertility Bowl" }

Went in for a scan yesterday because I was having spotting and cramping at 12 weeks. The OB saw fluid behind the baby’s neck and is referring us to see a high risk doctor immediately. NIPT was negative. I’m panicking. Have any of you been through this?

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I’m so sorry. I have zero experience but I’m sending a hug of calm.

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I wouldn’t freak out yet. Increased fluid can be a sign of Down’s syndrome, but some level of fluid can be totally normal. Since your NIPT is negative (which is 90%+) accurate, I’d go with that for now. My guess is that your OB refers anyone to a MFM as a matter of course when anything potentially pops up.

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Correct, because patients will sue them if they don’t refer to MFM

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Baby has a 5.5 mm cystic hygroma from neck to rump. The MFM asked us if we wanted to terminate, which seemed rash. Instead, we opted for testing. I was given instructions to watch for and of what to do in the case of a miscarriage. I did a CVS a week ago; the FISH test came back negative and confirmed the NIPT test. We are still waiting on the microarray, karyotype, and Noonan’s tests, which will come over the next 2-3 weeks. I have an early anatomy scan in two weeks where they will check for any physical defect or development abnormalities. At that point, I may need to do amnio. The 20 week scan will tell us more. Right now, all we can do is wait and see as we work to rule out any issues and hope for the best.

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No, but if NIPT is negative, then what is the OB concerned about ? Going to high risk doctor is fine but does she have a diagnosis ?

I wasn’t aware of this but I can understand all the stress and anxiety this might be causing. Sending prayers and hugs. Hopefully this resolves without any concerns.

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What happened here finally?

Final resolution: we lost the baby. I had spotting and cramping one day, no heartbeat on the ultrasound the next, and a D&E the day after that. Currently awaiting the pathology report to learn what, if anything, might have gone wrong.

I’m so sorry dear. I hope you are surviving and supported. We’re here. 🙏🏽

So sorry for your loss

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