I’ve had a lot of death in life. Lost a dear friend to suicide at 22, my father at 27, my closest grandparent at 30. Others in between.
It’s been confirmed that someone I’ve known since I was born was is now the 3rd person in her family to be diagnosed w/ hereditary cerebral ataxia (no cure). Her mom and older sister already passed. Their whole family was an extended family growing up. She’s a month older, I don’t know what to say or do. I love her and I can’t bear the thought of another loss.

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So sorry you went through all that, OP. It sucks especially when you know there’s nothing you can do to change the outcome. For now, I guess try to show up for her in whatever way you can. Video call, sending a care package or something. There’s no easy way out of this but I hope you stay strong.

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It’s ok to grieve but don’t miss out on the life that’s in front of you while focusing so much on the lives that were lost.

Not sure what to say or how to be there when she has cerebral ataxia and lives 3,000 miles away. It will end in death and if the onset is same as her sister, it will be within the next couple of years.

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