We just had our 20 week scan and found out that baby has a cleft lip.

They are going to do another scan in a few weeks to see if they can better see her palate to see how far the cleft extends (she wasn't giving them good angles today).

Anyone have any advice or know of good support groups? I don't even know what to think about this yet and I'm worried how this will impact her long term. The Facebook cleft support groups I found weren't as helpful as I'd like.

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I don’t have advice or support groups, but 3 of my best friend’s 12 siblings were born with cleft lips and had them surgically fixed. One was more significant than the other 2, so she needed surgery and her teeth needed more advanced work until her teens. One of her kids was born with a cleft, and they had it surgically fixed up in year one and he’s done with surgery.
They are awesome and so cute.

I’m sorry you are going through stress and anxiety about your baby’s health and I get it and just sending prayers that it isn’t severe and that things go smoothly and wonderfully for you and your family ❤️

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Also don’t have much advice or support groups, but my sister is law had a cleft lip when she was born as well, and had surgery later in her toddler years to get it “fixed”. She lives a great life, is a talented wind musician, and has stated that it’s not something she even thinks about nowadays. The stress and anxiety around it is warranted, but your baby is going to have a beautiful life no matter what.

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